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#migraines

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Maggie Maybe

I have to celebrate a small win for my sensory sensitive disabled self.

It’s taken me four years but I believe I have finally won the battle with Concord Hospital over the abusive level of the hold music the call center uses.

It would give me #PEM every time I had to call my doctor. And if I send a message through the portal it takes three days for them to get back to me so that’s not always practical.

They didn’t care when I complained that it hurt because of #MECFS, they didn’t care when I asked them how #autistic people who have more sensory issues than I do even call their doctor, they didn’t care when I told them that everyone on their staff in the clinical locations hates the call center as much as I do, but they did care when I accused them of trying to trigger #migraines so that they can admit me and bill #Medicare $25,000.

But you know what actually did it? I found out there was a civil rights division at Concord Hospital and I complained to them instead of patient relations. When I started talking about the rehabilitation act of 1974 (or 1973 idk) patient relations didn’t care, but the civil rights department did.

And I’m still dying to know who owns that call center because it’s the same call center used by NH #DHHS if you have to call the welfare office. So I suspect it’s someone related to Chris Sununu and they’re locked into some awful contract. The food stamp workers hate the call center too. I’ve been talking to people about this for four years.
I finally won. It’s been a good week for me here in New Hampshire.

#CivilRights#PatientCare#SensoryIssues
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Benjamin Carr, Ph.D. 👨🏻‍💻🧬

First of Its Kind Study Lists #Health Benefits of Drinking More #Water Each Day
The most significant benefits associated with drinking more water were reducing the risk of #kidneystones and assisting in #weightloss. Individual studies also showed more water was linked to preventing #migraines and urinary tract infections, and controlling #diabetes and low #bloodpressure.
sciencealert.com/first-of-its-

ScienceAlert · First of Its Kind Study Lists Health Benefits of Drinking More Water Each DayWe all know that staying hydrated is good for human health – but a new study goes into more specific detail about all the various benefits that come along with drinking plenty of water, and you might not be aware of just how many there are.
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AnneTheWriter

@dustcircle

My undiagnosed vitamin D deficiency caused me to have #migraines for years. If only I had known that taking a simple vitamin would have stopped them! It's amazing what can go wrong with our bodies without us realizing it. (For anyone else with migraines, it took me about three months of taking supplements before the migraines went away completely. Whenever I've left off the vitamins for a short while, they've come back.)

In my case, I'm very lactose-intolerant in an American cheese-loving and milk-loving culture, and I don't like dark green vegetables much, so I can guess why mine happened. I also have #PCOS, which would have added to it.

But I do think our society's tendency towards being indoors on computers or in front of TVs all the time is not helping with everyone's health.

#ChronicMigraines#VitaminDeficiencies#VitaminD
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Danette 🐬

So after I changed jobs I went on #UHC They weren’t bad at that time. I paid $50 a month and had a $15 copay- way lower than prev. I could see a specialist who worked magic on my migraines.
Today: UHC plan is way more expensive & they no longer covering everything. My dr has prescribed multiple medications that UHC has denied. The pharmacy works to find some workaround- they get my financials & see if I qualify. I survive #migraines no thanks to insurance companies #healthinsurace

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Danette 🐬

Some of my friends here know I have #migraines When I was w/ Kaiser they didn’t have neurologists to treat my migraines- they tried 3 different blood pressure medications & then it was 🤷🏼‍♀️ we don’t know what your going to do. No denial of coverage just - that’s it. So sad. Take pain relief meds.
Which I did.
And then one day when I was getting my sumatriptan refilled, I overheard the pharmacist yell over the counter, “another refill? My god. She can’t take this much of this medication.”
/1

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Maggie Maybe

I had botox for migraines today for the first time in 20 years. I had never met the provider who was going to do it but she’s a DO so I was worried she would object to injecting my forehead because I have a mask on. (The DOs I knew before covid were woo woo) I was ready to push back but accept if I had to as long as she did all the other spots.

I was DELIGHTED when she walked in the room and said “oh hello fellow masker I think we are the last ones left!” she was actually shocked when I told her I haven’t had Covid yet. Even after I explained that I’m privileged enough to live alone, no kids, disabled so I don’t work, she was still surprised. #MasksWork

#ConcordHospitalLove #neurology #Novid
#botox #migraines

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Maggie Maybe

Injectible fentanyl, dilaudid, and morphine are on shortage according to the #FDA.

It’s also a little scary that the benzos by IV are also on a shortage.

And promethazine by IV.

So, basically whatever they would give me (not the fentanyl but the rest) in the IV to stop abdominal #migraines. Awesome.

dps.fda.gov/drugshortages

dps.fda.govDrug Shortages | FDAThe FDA is responsible for protecting the public health by ensuring the safety, efficacy, and security of human and veterinary drugs, biological products, and medical devices; and by ensuring the safety of our nation's food supply, cosmetics, and products that products that emit radiation.
#DrugShortages
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Tania Allard :python:

After thinking about it (and dreading it) I finally decided to give "ice plunge" a try.
As someone who gets cold so easily and that dislikes the feeling (of being cold) a lot this sounded like some sort of personal hell.
It was every bit as uncomfortable as I thought it would be. But my chronic #migraines have been so out of control recently that I have been trying multiple things to help with them.

Fingers crossed 🤞🏽

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