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#mecfs

52 posts27 participants8 posts today

“We’ve been conditioned by society that pain is weakness. That being sick is something you can overcome by simply trying harder.”

You can’t “try harder” your way out of disability. It’s not a weakness or a moral failing.

It is one of the only minority groups you can join at any time.

Ableism forces us to hide our suffering. To smile through the pain and deliver a convincing “I’m fine”

My latest looks at what would happen if we stopped hiding, as well as ways you can support the disabled person in your life.

disabledginger.com/p/why-are-c

The Disabled Ginger · Why Are Chronically Ill People Forced to Hide Their Pain?By Broadwaybabyto

Tomorrow is a gift that the chronically ill never get to receive. When you’re temporarily sick, you know that it’s going to improve. You can rest because you have the knowledge that the next day will be a little bit better. Each day there will be progress until you’re completely ‘fine’ again.

disabledginger.com/p/why-are-c

The Disabled Ginger · Why Are Chronically Ill People Forced to Hide Their Pain?By Broadwaybabyto

Es ist hart, den Verfall eines Menschen mitzuerleben, der #MECFS hat. Vergessen der einfachsten Dinge, Sachen fallen herunter, alltägliche Handgriffe misslingen, wohl auf dem Weg zur Demenz. Ein anderer Mensch als der, den ich einst so stark empfunden und bewundert habe. Meine Frau. Und ich habe auch MECFS. Vielleicht habe ich noch einen kleinen Aufschub, aber wahrscheinlich das selbe Schicksal. Auslöser eine Pandemie, die viele nicht mehr wahrhaben wollen. #PostCovid

“I don’t know how you do it! I could never be chronically ill!”

We didn’t get a choice. No one asked our permission. Disability just happens. It can happen to you too.

We cope because we have no choice. We can’t trade our bodies in for new ones. We can’t “try harder” our way out of it.

“Unfortunately most people can’t process the lack of choice in the matter. They genuinely believe that we either want to be this sick, or could get better if we really ‘tried’. They believe they wouldn’t be able to handle what we go through, because they’re convinced they will never NEED to handle it. They’re the exception. Chronic illness won’t happen to them”

disabledginger.com/p/why-are-c

The Disabled Ginger · Why Are Chronically Ill People Forced to Hide Their Pain?By Broadwaybabyto