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Leah McElrathThe importance—even the existence—of the brain glymphatic system has only recently been noticed, but it turns out the brain has its own waste clearance system that affects neurological function. This is important for those living with <a class="hashtag" href="https://bsky.app/search?q=%23migraines" rel="nofollow noopener noreferrer" target="_blank">#migraines</a> as well. <a class="hashtag" href="https://bsky.app/search?q=%23MECFS" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://pmc.ncbi.nlm.nih.gov/articles/PMC4636982/#:~:text=The%20glymphatic%20system%20is%20a,from%20the%20central%20nervous%20system" rel="nofollow noopener noreferrer" target="_blank">pmc.ncbi.nlm.nih.gov/articles/PMC...</a>

Tom KindlonSupport Group Recap: Self-Compassion Amidst Chronic Illness February 11, 2025 <a href="https://batemanhornecenter.org/wp-content/uploads/2025/02/20250211-Support-Group-Recap.pdf" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://batemanhornecenter.org/wp-content/uploads/2025/02/20250211-Support-Group-Recap.pdf</a><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://disabled.social/tags/neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neisvoid</a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chroniclife</a> <a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonielife</a> <a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#hiddenillness</a> <a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#invisibleillness</a> <a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllnesses</a> <a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a> <a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicallyIll</a> <a href="https://disabled.social/tags/ChronicIllnessMemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllnessMemes</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://disabled.social/tags/Migraine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Migraine</a> <a href="https://disabled.social/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a> <a href="https://a.gup.pe/u/migrainechatgroup" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@migrainechatgroup</a> <a href="https://a.gup.pe/u/migrainechat" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@migrainechat</a> <a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@fibromyalgia</a> <a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://disabled.social/tags/Fibro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibro</a> <a href="https://disabled.social/tags/FMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FMS</a> <a href="https://disabled.social/tags/FM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FM</a>

Ehay2k<a href="https://newsie.social/@TheConversationUS" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@TheConversationUS</a> Fascinating article about cooking oils and their impact on health. If you suffer from <a href="https://mastodon.social/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a> then this is definitely worth a read.<a href="https://mastodon.social/tags/cookingoil" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#cookingoil</a> <a href="https://mastodon.social/tags/soybean" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#soybean</a> <a href="https://mastodon.social/tags/corn" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#corn</a>

Maggie MaybeI have to celebrate a small win for my sensory sensitive disabled self.It’s taken me four years but I believe I have finally won the battle with Concord Hospital over the abusive level of the hold music the call center uses.It would give me <a href="https://zeroes.ca/tags/PEM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PEM</a> every time I had to call my doctor. And if I send a message through the portal it takes three days for them to get back to me so that’s not always practical.They didn’t care when I complained that it hurt because of <a href="https://zeroes.ca/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a>, they didn’t care when I asked them how <a href="https://zeroes.ca/tags/autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autistic</a> people who have more sensory issues than I do even call their doctor, they didn’t care when I told them that everyone on their staff in the clinical locations hates the call center as much as I do, but they did care when I accused them of trying to trigger <a href="https://zeroes.ca/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a> so that they can admit me and bill <a href="https://zeroes.ca/tags/Medicare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Medicare</a> $25,000.But you know what actually did it? I found out there was a civil rights division at Concord Hospital and I complained to them instead of patient relations. When I started talking about the rehabilitation act of 1974 (or 1973 idk) patient relations didn’t care, but the civil rights department did.And I’m still dying to know who owns that call center because it’s the same call center used by NH <a href="https://zeroes.ca/tags/DHHS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DHHS</a> if you have to call the welfare office. So I suspect it’s someone related to Chris Sununu and they’re locked into some awful contract. The food stamp workers hate the call center too. I’ve been talking to people about this for four years. I finally won. It’s been a good week for me here in New Hampshire.<a href="https://zeroes.ca/tags/CivilRights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CivilRights</a> <a href="https://zeroes.ca/tags/PatientCare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PatientCare</a> <a href="https://zeroes.ca/tags/SensoryIssues" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SensoryIssues</a> <a href="https://zeroes.ca/tags/DisabilityRights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DisabilityRights</a> <a href="https://zeroes.ca/tags/Winning" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Winning</a>

CrankyCyborg (Matt)Waking at 4a in full body pain & agony, let's you know you're still alive & on the WORST timeline😔 If you have never woken up & immediately wished you hadn't, then you're far luckier than I/us♿🥄 <a href="https://bsky.app/search?q=%23ChronicIllness" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllness</a> <a href="https://bsky.app/search?q=%23ChronicPain" rel="nofollow noopener noreferrer" target="_blank">#ChronicPain</a> <a href="https://bsky.app/search?q=%23Spoonie" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://bsky.app/search?q=%23mecfs" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://bsky.app/search?q=%23cfs" rel="nofollow noopener noreferrer" target="_blank">#cfs</a> <a href="https://bsky.app/search?q=%23Fibromyalgia" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://bsky.app/search?q=%23FibroFlaresSuck" rel="nofollow noopener noreferrer" target="_blank">#FibroFlaresSuck</a> <a href="https://bsky.app/search?q=%23FibroFlare" rel="nofollow noopener noreferrer" target="_blank">#FibroFlare</a> <a href="https://bsky.app/search?q=%23migraines" rel="nofollow noopener noreferrer" target="_blank">#migraines</a>

Queen of is it spring yetIf you get <a href="https://newsie.social/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a> and have meds that work for you, did you ever have some that didn’t and also make it feel like your blood was boiling in your veins? I gave up after 3 meds all did this. But maybe it was too early? Dunno.

Queen of is it spring yetHave I mentioned lately that <a href="https://newsie.social/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a> are jerks?

Benjamin Carr, Ph.D. 👨🏻‍💻🧬First of Its Kind Study Lists <a href="https://hachyderm.io/tags/Health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Health</a> Benefits of Drinking More <a href="https://hachyderm.io/tags/Water" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Water</a> Each Day The most significant benefits associated with drinking more water were reducing the risk of <a href="https://hachyderm.io/tags/kidneystones" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#kidneystones</a> and assisting in <a href="https://hachyderm.io/tags/weightloss" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#weightloss</a>. Individual studies also showed more water was linked to preventing <a href="https://hachyderm.io/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a> and urinary tract infections, and controlling <a href="https://hachyderm.io/tags/diabetes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#diabetes</a> and low <a href="https://hachyderm.io/tags/bloodpressure" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#bloodpressure</a>. <a href="https://www.sciencealert.com/first-of-its-kind-study-lists-health-benefits-of-drinking-more-water-each-day" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.sciencealert.com/first-of-its-kind-study-lists-health-benefits-of-drinking-more-water-each-day</a>

AnneTheWriter<a href="https://mastodon.social/@dustcircle" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@dustcircle</a> My undiagnosed vitamin D deficiency caused me to have <a href="https://universeodon.com/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a> for years. If only I had known that taking a simple vitamin would have stopped them! It's amazing what can go wrong with our bodies without us realizing it. (For anyone else with migraines, it took me about three months of taking supplements before the migraines went away completely. Whenever I've left off the vitamins for a short while, they've come back.)In my case, I'm very lactose-intolerant in an American cheese-loving and milk-loving culture, and I don't like dark green vegetables much, so I can guess why mine happened. I also have <a href="https://universeodon.com/tags/PCOS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PCOS</a>, which would have added to it. But I do think our society's tendency towards being indoors on computers or in front of TVs all the time is not helping with everyone's health.<a href="https://universeodon.com/tags/ChronicMigraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicMigraines</a> <a href="https://universeodon.com/tags/VitaminDeficiencies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#VitaminDeficiencies</a> <a href="https://universeodon.com/tags/VitaminD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#VitaminD</a> <a href="https://universeodon.com/tags/Health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Health</a> <a href="https://universeodon.com/tags/MedicalInformation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MedicalInformation</a>

Danette 🐬So after I changed jobs I went on <a href="https://mstdn.social/tags/UHC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#UHC</a> They weren’t bad at that time. I paid $50 a month and had a $15 copay- way lower than prev. I could see a specialist who worked magic on my migraines. Today: UHC plan is way more expensive & they no longer covering everything. My dr has prescribed multiple medications that UHC has denied. The pharmacy works to find some workaround- they get my financials & see if I qualify. I survive <a href="https://mstdn.social/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a> no thanks to insurance companies <a href="https://mstdn.social/tags/healthinsurace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#healthinsurace</a>

Danette 🐬Some of my friends here know I have <a href="https://mstdn.social/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a> When I was w/ Kaiser they didn’t have neurologists to treat my migraines- they tried 3 different blood pressure medications & then it was 🤷🏼‍♀️ we don’t know what your going to do. No denial of coverage just - that’s it. So sad. Take pain relief meds. Which I did. And then one day when I was getting my sumatriptan refilled, I overheard the pharmacist yell over the counter, “another refill? My god. She can’t take this much of this medication.” /1

Maggie MaybeI had botox for migraines today for the first time in 20 years. I had never met the provider who was going to do it but she’s a DO so I was worried she would object to injecting my forehead because I have a mask on. (The DOs I knew before covid were woo woo) I was ready to push back but accept if I had to as long as she did all the other spots.I was DELIGHTED when she walked in the room and said “oh hello fellow masker I think we are the last ones left!” she was actually shocked when I told her I haven’t had Covid yet. Even after I explained that I’m privileged enough to live alone, no kids, disabled so I don’t work, she was still surprised. <a href="https://zeroes.ca/tags/MasksWork" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MasksWork</a> <a href="https://zeroes.ca/tags/ConcordHospitalLove" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ConcordHospitalLove</a> <a href="https://zeroes.ca/tags/neurology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neurology</a> <a href="https://zeroes.ca/tags/Novid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Novid</a> <a href="https://zeroes.ca/tags/botox" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#botox</a> <a href="https://zeroes.ca/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a>

Maggie MaybeInjectible fentanyl, dilaudid, and morphine are on shortage according to the <a href="https://zeroes.ca/tags/FDA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FDA</a>.It’s also a little scary that the benzos by IV are also on a shortage.And promethazine by IV. So, basically whatever they would give me (not the fentanyl but the rest) in the IV to stop abdominal <a href="https://zeroes.ca/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a>. Awesome.<a href="https://dps.fda.gov/drugshortages" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://dps.fda.gov/drugshortages</a> <a href="https://zeroes.ca/tags/DrugShortages" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DrugShortages</a>

Queen of is it spring yet<a href="https://newsie.social/tags/Migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Migraines</a> are boring.

Silo<a href="https://mastodon.social/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a>So the husband was incapacitated for 3 days straight.The emergency room was useless.Anyone have advice? Anyone been there?

Flipboard Science DeskHope for migraine sufferers. A new drug may prevent symptoms, if you spot certain signs before the headache starts. Read more from BBC Science Focus: <a href="https://flip.it/sgpdwY" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://flip.it/sgpdwY</a> <a href="https://flipboard.social/tags/Science" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Science</a> <a href="https://flipboard.social/tags/Health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Health</a> <a href="https://flipboard.social/tags/Medicine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Medicine</a> <a href="https://flipboard.social/tags/Human" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Human</a> <a href="https://flipboard.social/tags/Migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Migraines</a>Find more science news at <a href="https://flipboard.com/@sciencefocus" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@sciencefocus</a>.

Tania Allard :python:After thinking about it (and dreading it) I finally decided to give "ice plunge" a try. As someone who gets cold so easily and that dislikes the feeling (of being cold) a lot this sounded like some sort of personal hell. It was every bit as uncomfortable as I thought it would be. But my chronic <a href="https://chaos.social/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a> have been so out of control recently that I have been trying multiple things to help with them. Fingers crossed 🤞🏽

Danette 🐬I had Covid last week but now I have <a href="https://mstdn.social/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a>- which sucks in a major way because I’m already on 2 preventatives that mostly help- or did. Hopefully this will ease up in the next day or so

Lyle Solla-Yates<a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7606826/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7606826/</a> “The prevalence of headache/migraine was the highest among bisexual women (36.8%), followed by lesbians (24.7%), bisexual men (22.8%), heterosexual women (19.7%), gay men (14.8%), and heterosexual men (9.8%)” <a href="https://cville.online/tags/lgbtq" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#lgbtq</a> <a href="https://cville.online/tags/migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraines</a>

Flipboard News Desk<a href="https://flipboard.social/@Flipboard" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@Flipboard</a> <a href="https://mastodon.social/@gbhnews" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@gbhnews</a> From <a href="https://c.im/@NBC" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@NBC</a> : Could climate change be making migraines worse?<a href="https://flip.it/kjZuDX" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://flip.it/kjZuDX</a><a href="https://flipboard.social/tags/Newstodon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Newstodon</a> <a href="https://flipboard.social/tags/NewstodonFriday" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NewstodonFriday</a> <a href="https://flipboard.social/tags/Migraines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Migraines</a> <a href="https://flipboard.social/tags/Climate" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Climate</a> <a href="https://flipboard.social/tags/ClimateChange" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ClimateChange</a> <a href="https://flipboard.social/tags/Health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Health</a> <a href="https://flipboard.social/tags/Science" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Science</a>

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