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#cysticfibrosis

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Bytes Europe<p>CRISPR technologies paving the way for advances in regenerative medicine <a href="https://www.byteseu.com/825509/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">byteseu.com/825509/</span><span class="invisible"></span></a> <a href="https://pubeurope.com/tags/Cas9" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Cas9</span></a> <a href="https://pubeurope.com/tags/Cell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Cell</span></a> <a href="https://pubeurope.com/tags/CRISPR" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CRISPR</span></a> <a href="https://pubeurope.com/tags/CysticFibrosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CysticFibrosis</span></a> <a href="https://pubeurope.com/tags/Fibrosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fibrosis</span></a> <a href="https://pubeurope.com/tags/GENE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>GENE</span></a> <a href="https://pubeurope.com/tags/Genes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Genes</span></a> <a href="https://pubeurope.com/tags/Genetic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Genetic</span></a> <a href="https://pubeurope.com/tags/Medicine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Medicine</span></a> <a href="https://pubeurope.com/tags/OsteogenesisImperfecta" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>OsteogenesisImperfecta</span></a> <a href="https://pubeurope.com/tags/ProgenitorCells" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ProgenitorCells</span></a> <a href="https://pubeurope.com/tags/Research" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Research</span></a> <a href="https://pubeurope.com/tags/SickleCellDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SickleCellDisease</span></a> <a href="https://pubeurope.com/tags/StemCells" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StemCells</span></a> <a href="https://pubeurope.com/tags/Technology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Technology</span></a></p>
Faraiwe<p>Russell <a href="https://mstdn.social/tags/Vought" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Vought</span></a> is one of the main authors of <a href="https://mstdn.social/tags/Project2025" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Project2025</span></a>, the <a href="https://mstdn.social/tags/nazi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>nazi</span></a> movement guidebook for MAGAts.</p><p>His daughter suffers from <a href="https://mstdn.social/tags/CysticFibrosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CysticFibrosis</span></a>.</p><p>She was treated by a drug, <a href="https://mstdn.social/tags/Trikafta" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Trikafta</span></a>, developed by Vertex Pharmaceutic, under a grant by the National Institute of Health, US/DoH/NIH.</p><p>Project2025 is dismantling the <a href="https://mstdn.social/tags/NIH" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NIH</span></a>.</p><p>But it's ok. Vought already got what he needed.</p><p><a href="https://www.motherjones.com/politics/2025/02/project-2025-vought-medical-funding/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">motherjones.com/politics/2025/</span><span class="invisible">02/project-2025-vought-medical-funding/</span></a></p><p>MAGAts are NOT human, have no souls, can not be saved, are burnt meat.</p><p>2/2</p><p><a href="https://mstdn.social/tags/TurdReich" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>TurdReich</span></a></p>
Jamez Barrett 🜃 ॐ Ⓐ<p>Shocked to hear of the death of Steve Silberman <a href="https://newsie.social/@stevesilberman" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">newsie.social/@stevesilberman</span><span class="invisible"></span></a></p><p>We exchanged comments and posts and he liked a comment mentioning his book Neuro Tibes that I made on a friend's FB post on 29 August, which was the day he died. Like a wave goodbye. </p><p>His main impact was teaching me more about The Greatful Dead. His knowledge of the band was vast. For this alone he will be missed by millions of people.</p><p><a href="https://www.lgbtqnation.com/2024/08/steve-silberman-a-gay-author-who-helped-humanize-autism-dead-at-66/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">lgbtqnation.com/2024/08/steve-</span><span class="invisible">silberman-a-gay-author-who-helped-humanize-autism-dead-at-66/</span></a></p><p><a href="https://allenginsberg.org/2024/09/f-s-6/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">allenginsberg.org/2024/09/f-s-</span><span class="invisible">6/</span></a></p><p><a href="https://c.im/tags/autism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autism</span></a> <a href="https://c.im/tags/neurodiversity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neurodiversity</span></a> <a href="https://c.im/tags/cysticfibrosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cysticfibrosis</span></a> <a href="https://c.im/tags/science" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>science</span></a> <a href="https://c.im/tags/GratefulDead" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>GratefulDead</span></a> <a href="https://c.im/tags/BeatGeneration" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>BeatGeneration</span></a> <a href="https://c.im/tags/LGBTQ" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LGBTQ</span></a>+</p>
Matt Willemsen<p>Lethal Secret of One of The World's Deadliest Pathogens Finally Revealed<br><a href="https://www.sciencealert.com/lethal-secret-of-one-of-the-worlds-deadliest-pathogens-finally-revealed" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">sciencealert.com/lethal-secret</span><span class="invisible">-of-one-of-the-worlds-deadliest-pathogens-finally-revealed</span></a> <a href="https://mastodon.social/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>health</span></a> <a href="https://mastodon.social/tags/pathogen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pathogen</span></a> <a href="https://mastodon.social/tags/gram" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>gram</span></a>—negative <a href="https://mastodon.social/tags/bacterium" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>bacterium</span></a> <a href="https://mastodon.social/tags/Pseudomonasaeruginosa" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Pseudomonasaeruginosa</span></a> <a href="https://mastodon.social/tags/cysticfibrosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cysticfibrosis</span></a></p>
Matt Willemsen<p>Access to cystic fibrosis drugs approved in England<br><a href="https://www.bbc.com/news/articles/cxxxz01w462o" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">bbc.com/news/articles/cxxxz01w</span><span class="invisible">462o</span></a> <a href="https://mastodon.social/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>health</span></a> <a href="https://mastodon.social/tags/drugs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>drugs</span></a> <a href="https://mastodon.social/tags/CysticFibrosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CysticFibrosis</span></a> <a href="https://mastodon.social/tags/NHS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NHS</span></a> <a href="https://mastodon.social/tags/NICE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NICE</span></a> <a href="https://mastodon.social/tags/Kaftrio" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Kaftrio</span></a> <a href="https://mastodon.social/tags/Symkevi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Symkevi</span></a> # Orkambi <a href="https://mastodon.social/tags/FairPrice" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FairPrice</span></a></p>
Maggieci democracy enjoyer<p>Cure!<br>Trikafta, a new triple combination of drugs corrects the misshapen protein that causes cystic fibrosis.</p><p><a href="https://www.theatlantic.com/magazine/archive/2024/04/cystic-fibrosis-trikafta-breakthrough-treatment/677471" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theatlantic.com/magazine/archi</span><span class="invisible">ve/2024/04/cystic-fibrosis-trikafta-breakthrough-treatment/677471</span></a></p><p><a href="https://universeodon.com/tags/cysticfibrosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cysticfibrosis</span></a> <a href="https://universeodon.com/tags/science" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>science</span></a></p>
Longreads<p>"After a year on Trikafta, Jenny told Teresa something that she acknowledged sounded 'insane' but that her sister understood immediately: 'To no longer be actively dying kind of sucks,' she said." </p><p>For The Atlantic, Sarah Zhang examines the far-reaching, complex impact of a <a href="https://mastodon.world/tags/CysticFibrosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CysticFibrosis</span></a> drug called <a href="https://mastodon.world/tags/Trifakta" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Trifakta</span></a>: <a href="https://www.theatlantic.com/magazine/archive/2024/04/cystic-fibrosis-trikafta-breakthrough-treatment/677471/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theatlantic.com/magazine/archi</span><span class="invisible">ve/2024/04/cystic-fibrosis-trikafta-breakthrough-treatment/677471/</span></a> </p><p><a href="https://mastodon.world/tags/Longreads" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Longreads</span></a> <a href="https://mastodon.world/tags/Medicine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Medicine</span></a> <a href="https://mastodon.world/tags/Health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Health</span></a> <a href="https://mastodon.world/tags/Disease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Disease</span></a></p>
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