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#LongCovid

89 posts72 participants12 posts today
Augie Ray<p><a href="https://mastodon.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> Reinfections are more like to lead to <a href="https://mastodon.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a> in kids: </p><p>STUDY: Compared to the first infection, a second infection was associated with higher risk of:</p><p>- 2.08x overall PASC diagnosis<br>- 3.60x myocarditis<br>- 2.28x thrombophlebitis and thromboembolism<br>- 1.96x heart disease<br>- 1.89x acute kidney injury<br>- 1.59x arrhythmias<br>- 1.56x abnormal liver enzyme<br>-1.50x fatigue and malaise<br>-1.35x postural orthostatic tachycardia syndromes<br>- 1.32x cognitive functions</p><p><a href="https://www.medrxiv.org/content/10.1101/2025.03.28.25324858v1" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">medrxiv.org/content/10.1101/20</span><span class="invisible">25.03.28.25324858v1</span></a></p>
Brian Hawthorne<p>I sent this link to my primary care physician via their patient portal messaging. If you have long COVID or ME/CFS, you may want to do so as well.</p><p><a href="https://infosec.exchange/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://infosec.exchange/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://infosec.exchange/tags/LivingWithLongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LivingWithLongCovid</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p><a href="https://www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">mayoclinicproceedings.org/arti</span><span class="invisible">cle/s0025-6196(23)00402-0/fulltext</span></a> <a href="https://bsky.brid.gy/r/https://bsky.app/profile/did:plc:tcsbdikr56g3kfefsah3cz4s/post/3llmre5o5ys2s" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">bsky.brid.gy/r/https://bsky.ap</span><span class="invisible">p/profile/did:plc:tcsbdikr56g3kfefsah3cz4s/post/3llmre5o5ys2s</span></a></p>
jiujensu🇵🇸<p>From covid data reports on twitter:<br>Association between COVID-19 and the development of chronic kidney disease in patients without initial acute kidney injury.<br><a href="https://www.nature.com/articles/s41598-025-96032-4" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">nature.com/articles/s41598-025</span><span class="invisible">-96032-4</span></a></p><p><a href="https://mas.to/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> <a href="https://mas.to/tags/kidneydisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>kidneydisease</span></a> <a href="https://mas.to/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://mas.to/tags/coviddata" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>coviddata</span></a> <a href="https://mas.to/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a></p>
Jen<p>Apparently, I need to order my repeat meds "at least 5 (working?) days before they are due." The GP needs 48 hours to do their bit and then the pharmacy need 48 hours to do theirs.</p><p>Fine.</p><p>But if I order 8 (calendar) days in advance, that's too early, and they won't pass it to the pharmacy until the day I should start taking them.</p><p>To avoid stockpiling.</p><p>So I'm now thinking about how to create a stockpile.</p><p>To avoid withdrawal.</p><p><a href="https://geekdom.social/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://geekdom.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
Darcy Casselman<p>University of Waterloo students raise awareness about Long COVID – CTVNews</p><p><a href="https://www.ctvnews.ca/kitchener/article/university-of-waterloo-students-raise-awareness-about-long-covid/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">ctvnews.ca/kitchener/article/u</span><span class="invisible">niversity-of-waterloo-students-raise-awareness-about-long-covid/</span></a><br><a href="https://mastodon.social/tags/uwaterloo" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>uwaterloo</span></a> <a href="https://mastodon.social/tags/waterlooregion" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>waterlooregion</span></a> <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
Málaga AutoDefensa SanitariaLa mitad de las infecciones de COVID son asintomáticas, lo tienes y no lo sabes<br> Mínimo el 10% de toda forma de infección acaba en LONG COVID, una enfermedad nueva, la mayoría de los médicos no te creen y usar su autoridad como violencia, las personas pobres y oprimidas son las más afectadas por esta eugenesia <br> Las vacunas no frenan ni la transmisión, ni la infección, ni el desarrollo de LONG COVID. las vacunas no están siendo actualizadas porque no paran de haber nuevas variantes por la negligencia del estado y la falta de mascarilla colectiva <br> <a href="https://pixelfed.social/discover/tags/MaskUp?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#MaskUp</a> <a href="https://pixelfed.social/discover/tags/WearAMask?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#WearAMask</a> <a href="https://pixelfed.social/discover/tags/CovidRealist?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#CovidRealist</a> <a href="https://pixelfed.social/discover/tags/CovidIsAirbone?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#CovidIsAirbone</a> <br> <br> <a href="https://pixelfed.social/discover/tags/LlevaMascarilla?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#LlevaMascarilla</a> <a href="https://pixelfed.social/discover/tags/RealistaCovid?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#RealistaCovid</a> <a href="https://pixelfed.social/discover/tags/CovidSonAerosoles?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#CovidSonAerosoles</a> <a href="https://pixelfed.social/discover/tags/birdflu?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#birdflu</a> <a href="https://pixelfed.social/discover/tags/gripeaviar?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#gripeaviar</a> <a href="https://pixelfed.social/discover/tags/LongCovid?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a><br> 10 Acciones para la Solidaridad durante la Pandemia<br> Escrito por <a class="u-url mention" href="https://pixelfed.social/ps4.future" rel="nofollow noopener noreferrer" target="_blank">@ps4.future</a><br> Mientras las instituciones capitalistas producen enfermedades y muerte masivas, no debemos abandonarnos entre nosotros. Juntos, tenemos el poder de dar forma a nuestras comunidades. Para hacerlo, debemos priorizar la salud y la seguridad de todas nuestras personas comprometiéndonos con estas 10 acciones:<br> 1. USAR MASCARILLA: de alta calidad y bien ajustadas.<br> 2. LIMPIAR EL AIRE: con purificadores de aire, abriendo ventanas<br> 3. PRUEBAS FRECUENTES: de calidad PCR cuando sea posible. Aíslate de los demás en tu hogar y comunidad si das positivo o estás enfermo.<br> 4. PLAN CAPAS.<br> 5. COMPARTIR HERRAMIENTAS<br> 6. CAMBIAR LA NARRATIVA: Utiliza un lenguaje intencional para promover la seguridad del COVID-19 y combatir la desinformación, minimización y negación en tus relaciones y comunidades.<br> 7. EXIGIR SEGURIDAD.<br> 8. PROTEGER ESPACIOS PÚBLICOS: Exige requisitos rigurosos y sólidos de seguridad COVID-19. Boicotea a aquellos que no los implementen.<br> 9. EXIGIR PROTECCIÓN GUBERNAMENTAL.<br> 10. ACTUAR EN SOLIDARIDAD: Prioriza tu compromiso con la liberación, lucha contra todos los sistemas de opresión y apoya a grupos que luchan por futuros justos.
Córdoba AutoDefensa SanitariaEl COVID no ha terminado:<br> • El 50% de las infecciones son asintomáticas.<br> • Mínimo 10% de las infecciones acaban en COVID persistente.<br> • Las vacunas no evitan ni reinfecciones, ni el contagio, ni las secuelas persistentes del COVID.<br> • Las reinfecciones nos destrozan. No hay forma de “entrenar” el sistema inmunológico porque no es un músculo. hay una idea errónea común de que la exposición a gérmenes dañinos fortalece el sistema inmunológico. las enfermedades virales como COVID, gripe, sarampión debilitan el sistema inmunológico, dejando la posibilidad de daños duraderos. La realidad es que no construyes tu inmunidad con infecciones repetidas, las vacunas fortalecen el sistema inmunológico enseñándole a reconocer los patógenos sin todos los riesgos. Centrarnos en la prevención de las infecciones es clave.<br> • Un test de antígeno rápido solo logra detectar con éxito alrededor del 60% de las infecciones tempranas sintomáticas y aproximadamente el 22% de las infecciones asintomáticas. Los PCR y test moleculares son los test con más precisión. <br> • El COVID se propaga y mueve como el humo de un cigarro, piensa en las personas de tu alrededor y en ti como personas que están todo el día fumando, se hace más visual entender cómo se mueve el COVID. <br> • En las infecciones con síntomas se tarda un par de días en dar los síntomas lo que quiere decir que estás por lo menos un par de días infectando sin saberlo. Eres infeccioso de COVID por lo menos 10 días.<br> <br> <a href="https://pixelfed.social/discover/tags/MaskUp?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#MaskUp</a> <a href="https://pixelfed.social/discover/tags/WearAMask?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#WearAMask</a> <a href="https://pixelfed.social/discover/tags/CovidRealist?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#CovidRealist</a> <a href="https://pixelfed.social/discover/tags/CovidIsAirbone?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#CovidIsAirbone</a> <br> <br> <a href="https://pixelfed.social/discover/tags/LlevaMascarilla?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#LlevaMascarilla</a> <a href="https://pixelfed.social/discover/tags/RealistaCovid?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#RealistaCovid</a> <a href="https://pixelfed.social/discover/tags/CovidSonAerosoles?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#CovidSonAerosoles</a> <a href="https://pixelfed.social/discover/tags/birdflu?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#birdflu</a> <a href="https://pixelfed.social/discover/tags/gripeaviar?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#gripeaviar</a> <a href="https://pixelfed.social/discover/tags/LongCovid?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a>
datum (n=1)<p>Hey! Are you in the USA? Do you (or someone you know) have any of:</p><ul><li>hypersomnia</li><li>complex sleep disturbances</li><li>postural orthostatic tachycardia syndrome, or POTS</li></ul><p>which started or worsened after a bout of acute COVID-19?</p><p><strong>Trials are open for treatments for these symptoms!</strong></p><blockquote><p>Those interested in participating in the trials can contact the clinic for screening to see if they are eligible. The team can be reached via email at covidtrialsuva@uvahealth.org, or by phone at 434-243-4008 or toll-free at 855-882-5334.</p></blockquote><p>and they seem like good folks:</p><blockquote><p>“We see patients coming in who are frustrated because they look fairly normal, but they cannot fully function and are not being believed,” she said. “So, for those people, I want to say this is truly a disease and you are not imagining anything.”</p></blockquote><p>While UVA is in Virginia the article suggests it is a USA-wide national study.</p><p><a href="https://news.virginia.edu/content/uva-health-takes-aim-long-covid-two-national-clinical-trials" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">news.virginia.edu/content/uva-</span><span class="invisible">health-takes-aim-long-covid-two-national-clinical-trials</span></a></p><p><a href="https://zeroes.ca/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> <a href="https://zeroes.ca/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> <a href="https://zeroes.ca/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a> <a href="https://zeroes.ca/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://zeroes.ca/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://zeroes.ca/tags/PEM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PEM</span></a> <a href="https://zeroes.ca/tags/PostExertionalMalaise" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostExertionalMalaise</span></a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://zeroes.ca/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a></p>
Tom Kindlon<p>Registration for online participation in the International ME/CFS Conference 2025 on 12-13 May 2025 is now open</p><p><a href="https://events.mecfs-research.org/en/events/conference_2025" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">events.mecfs-research.org/en/e</span><span class="invisible">vents/conference_2025</span></a></p><p>Image is from the latest Science for ME weekly update</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covidlonghaulers</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longhaulers</span></a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDBrain</span></a> <a href="https://disabled.social/tags/NeuroPASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NeuroPASC</span></a></p>
Amanda Finley Digs All Things<p>The administration’s research funding and DEI cuts present an existential threat to regional public universities like Southern Illinois University, the economic backbone of the conservative rural region it serves.</p><p><a href="https://www.propublica.org/article/regional-public-universities-trump-funding-dei?utm_campaign=propublica-sprout&amp;utm_content=1743375606&amp;utm" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">propublica.org/article/regiona</span><span class="invisible">l-public-universities-trump-funding-dei?utm_campaign=propublica-sprout&amp;utm_content=1743375606&amp;utm</span></a><br> <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://mstdn.social/tags/Holidays" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Holidays</span></a> <a href="https://mstdn.social/tags/Christmas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Christmas</span></a> <a href="https://mstdn.social/tags/AdoptAFamily" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>AdoptAFamily</span></a></p>
Amanda Finley Digs All Things<p>U Netherlands has also warned researchers about the questionnaire. The USGS questionnaire asks, for example, whether the researcher’s organisation works with ‘entities associated with communist, socialist, or totalitarian parties’, whether the research project has taken ‘appropriate measures’ to ‘defend against gender ideology’ and whether the project has ‘measurable benefits for US domestic industries, workforce, or economic sectors’."<br>is.gd/mEDwQt<br> <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://mstdn.social/tags/Holidays" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Holidays</span></a> <a href="https://mstdn.social/tags/Christmas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Christmas</span></a> <a href="https://mstdn.social/tags/AdoptAFamily" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>AdoptAFamily</span></a></p>
Tom Kindlon<p>Trial by Error by David Tuller </p><p>BMJ's Strange Response to Our Letter of Concern Regarding "Living Systematic review" of Long Covid Interventions</p><p><a href="https://virology.ws/2025/03/28/trial-by-error-bmjs-strange-response-to-our-letter-of-concern-regarding-living-systematic-review-of-long-covid-interventions/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">virology.ws/2025/03/28/trial-b</span><span class="invisible">y-error-bmjs-strange-response-to-our-letter-of-concern-regarding-living-systematic-review-of-long-covid-interventions/</span></a></p><p>About ongoing aftermaths after Tuller with 18 colleagues sent a letter to BMJ requesting a correction to a problematic review of LC treatments.</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid</span></a> <br><a href="https://disabled.social/tags/CovidBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidBrain</span></a></p>
Tom Kindlon<p>(Repeat from a few months ago)</p><p>Most Troubling Symptoms in ME/CFS &amp; Long COVID Patients. Bar graph shows the frequency of symptoms reported by patients with <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a><br>(blue) &amp; <a href="https://disabled.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a> (red)</p><p>From:<br>"Patient-Reported Treatment Outcomes in ME/CFS &amp; Long COVID"<br><a href="https://www.medrxiv.org/content/10.1101/2024.11.27.24317656v1.full.pdf" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">medrxiv.org/content/10.1101/20</span><span class="invisible">24.11.27.24317656v1.full.pdf</span></a></p><p><a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <a href="https://disabled.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span></p>
Science for ME<p>Our latest News in Brief post has headlines and links to further reading for <a href="https://med-mastodon.com/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a>, <a href="https://med-mastodon.com/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a>, and related news, advocacy and research for the week of March 24 - 30.</p><p>Topics:<br>News, advocacy and articles<br>Coming events<br>Research news and commentary<br>&amp; Published research</p><p><a href="https://www.s4me.info/threads/news-in-brief-march-2025.43011/#post-597543" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">s4me.info/threads/news-in-brie</span><span class="invisible">f-march-2025.43011/#post-597543</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
Tom Kindlon<p>“Canadian Guidelines for Post COVID-19 Condition: This set of guidelines has been updated with new recommendations.”<br><a href="https://canpcc.ca/guidelines/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">canpcc.ca/guidelines/</span><span class="invisible"></span></a></p><p>Summary by an advocate: <a href="https://www.s4me.info/threads/canadian-guidelines-for-post-covid-19-condition.43322/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">s4me.info/threads/canadian-gui</span><span class="invisible">delines-for-post-covid-19-condition.43322/</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid</span></a> <br><a href="https://disabled.social/tags/CovidBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidBrain</span></a></p>
Alexis Bushnell<p>Note to me; just because you're having a good couple of days doesn't mean you no longer have <a href="https://toot.wales/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a>.</p><p>Rest.</p>
CordeliaAppleb1<p><a href="https://hachyderm.io/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://hachyderm.io/tags/art" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>art</span></a> <a href="https://hachyderm.io/tags/painting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>painting</span></a> <a href="https://hachyderm.io/tags/watercolour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>watercolour</span></a> <a href="https://hachyderm.io/tags/watercolours" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>watercolours</span></a> <a href="https://hachyderm.io/tags/watercolor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>watercolor</span></a> <a href="https://hachyderm.io/tags/portraits" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>portraits</span></a> <a href="https://hachyderm.io/tags/portrait" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>portrait</span></a> <a href="https://hachyderm.io/tags/selfportrait" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>selfportrait</span></a> <a href="https://hachyderm.io/tags/figurative" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>figurative</span></a> <a href="https://hachyderm.io/tags/sickness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sickness</span></a> <a href="https://hachyderm.io/tags/aquarelle" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>aquarelle</span></a> <a href="https://hachyderm.io/tags/aquarell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>aquarell</span></a> <a href="https://hachyderm.io/tags/aquarel" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>aquarel</span></a> <a href="https://hachyderm.io/tags/inkyparkers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>inkyparkers</span></a> <a href="https://hachyderm.io/tags/CreativeToots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CreativeToots</span></a> <a href="https://hachyderm.io/tags/mastoart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mastoart</span></a> <a href="https://hachyderm.io/tags/mastoartist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mastoartist</span></a></p>
Science4ME News Bot<p>Science for ME: News in Brief<br>24 - 30 Mar 2025</p><p>This week's research articles, media items, advocacy and other news relating to <a href="https://mas.to/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> and <a href="https://mas.to/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p><p><a href="https://www.s4me.info/threads/news-in-brief-march-2025.43011/#post-597543" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">s4me.info/threads/news-in-brie</span><span class="invisible">f-march-2025.43011/#post-597543</span></a></p>
Caramelized Shallots<p>Anyone protesting on <a href="https://ohai.social/tags/April5" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>April5</span></a> or <a href="https://ohai.social/tags/TeslaTakedowns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>TeslaTakedowns</span></a>, or any other action, please <a href="https://ohai.social/tags/WearARespirator" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>WearARespirator</span></a>. We don’t need any more comrades getting <a href="https://ohai.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a>, because <a href="https://ohai.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a>. Please and thank you. </p><p><a href="https://archive.md/2025.03.27-181705/https://www.washingtonpost.com/wellness/2025/03/27/long-covid-brain-cognition/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">archive.md/2025.03.27-181705/h</span><span class="invisible">ttps://www.washingtonpost.com/wellness/2025/03/27/long-covid-brain-cognition/</span></a></p>
Broadwaybabyto<p>I just had a guy get angry at me for saying we’re still in a pandemic. He said it was fear mongering and “silly” to continue to take precautions. </p><p>He then went on to say his wife has Long Covid and he’s had Covid “at least 4-5 times”. </p><p>This attitude is why we’re in this mess. His own wife was disabled by Covid, and rather than adapt his behaviour he’s exposed her 4-5 additional times. </p><p>Repeat infections are devastating to those with Long Covid. Not to mention each infection does cumulative damage, and eventually you will be left disabled. </p><p>Even if you’re someone who believes it’s “just a flu”… surely you recognize people didn’t get the flu 4-5 times in a four year period? Being sick that often is an aberration, and a darn good reason to take precautions. </p><p>You know who hasn’t had COVID 4-5 times? People who are taking precautions. </p><p>Bonus tip: If you’re masking and you become infected anyways, you’ve reduced your viral load AND you’ve made sure not to infect anyone else. That’s community care &amp; compassion and it’s worth doing.</p><p><a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisairborne</span></a> <a href="https://zeroes.ca/tags/covidisnotover" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisnotover</span></a> <a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/sarscov2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sarscov2</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/eugenics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eugenics</span></a></p>
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